Saturday, December 4, 2010

Chloe loves her grandparents.

Chloe likes to see her grandparents every Saturday evening.



Chloe's grandparents have been regularly visiting Chloe every Saturday.  
The are frequent visitors of Chloe's blog as well.  
We took the pictures of them in Chloe's room for the first time.  
They are happy to witness Chloe's progress and to see her liveliness in her eyes and gestures.
We specially thank Chloe's grandma for preparing and bringing home-cooked dinners to hospital each week.  We are fortunate to have them in these difficult times.





Chloe's grandpa measured height for Chloe.  Her height was 52 cm.



And Chloe really likes to play with her dad, she is a daddy's girl.



Chloe has skin problem from prolonged skin covering by the TPN pick line dressing and tapes.
TPN IV line goes through her arm down stream to large vein near the heart.  Infection prevention is critical so the dressing on her arm has been very tight.
The picture shows Chloe's arm after taking off heavy layers of tegederm and tapes.  This obvious picture was not visible with layers of semi transparent tapes.  Nurses including attending, resource and NP's all have been saying it was okay, but Chloe's mommy had the correct instinct.  She called the IV team to come down to Chloe's room and to redress her arm in a different method so the worst skin area could breath air.  
The power match between the IV team members and the resource nurse of NICU floor was rather intense during the procedure.  She now has the minimum area of one tegedurm layer and tapes.  The "no-no" (soft cast to prevent her arm from bending) will not be used in order to minimize sweat at her arm.

14 ml/hr of breast milk today.  10.4 HAL
18 ml/hr of milk through NG tube is the immediate goal for now.  The intestinal rehap team had told us that when Chloe is able to intake 18 ml/hr, then they will let go of TPN line.  It will be a challenge and a blessing.

Wednesday, December 1, 2010