Wednesday, November 17, 2010

Nov. 17, 10 - The sweat test has been changed


 Day 43

The schedule of sweat test for cystic fibrosis has been changed to Nov. 18, 2010 at 11:30 am. Today nurse, RN. Jenn changed chloe's bags for ileostomy and mucous fistula yesterday and today morning too :( Jenn's skill was much better than yesterday morning. hope it works as long as~~~~~.

Chloe had high volume of outputs from her ostomy during the last three days, everyone was aware of the high volume. Therefore her feeding speed of breast milk thru NG tube still remained 7 ml per 1 hr. However medical team decided to increase the volume of TPN IV to 13.2 hal, 0.5 lipid because Chloe is on 7 lb.

Total output was 177 ml on yesterday. But Chloe has 54 ml until 5:00 pm on today, which is half of the amount of yesterday at the same time. It is less than yesterday. Chloe was losing weight little bit because of the high volume of output from her ostomy. She is 7 lb and 5 oz last night.

Chloe has been sleeping all morning :) she seems tired.


Even when the physical therapist came to her, she was too sleepy, so Chloe needs to do it later.

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