We had meeting with Surgeon Hedrick. It was a beneficial meeting for us because she cleared up several important questions of ours:
(1) She plans to do stoma-reversal surgery on Chloe at the end of december or early january. In theory, ideal time for reversal is 9-12 weeks after stoma surgery.
1a) 16 ml/hr intake through her stomach is not a requirement for the second surgery.
(2) Chloe has all 3 sections of small intestine: duodenum, jejunum, and ileum, although each length is short except duodenum. She has ileocecal valve.
2a) She has 19 cm of ileum. Ileum is important for absorbing fat-soluble vitamins (A,D,E,K) and vitamin B12.
For reference, a person without ileum requires shots to supplement meals.
(3) Chloe will not be discharged prior to second surgery (stoma reversal). After second surgery, Chloe will be taken care of at CHOP until she is ready to go home. Depending on her feed speed at that time, TPN may be administered at home after discharge.
Other information:
Blood tests are on Monday and Thursday each week. This monitors her liver function by measuring content detail of blood.
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